Our Crew

Not a big deal but it needs to be closely monitored. Unfortunately, we did not know that at the time.

Chace developed severe jaundice. Three days after being released, I brought him to the doctor and his jaundice level was very high. It was at a level 33. The second highest the hospital has ever had.   Anything above 25 starts frying the brain. He had to have a double volume blood exchange transfusion to remove the billirubin and spent 9 days in the NICU. It was so scary.

Due to this medical negligence, my son lost most of his hearing, he has a rare type of brain damage called Kernicterus and he has a movement disorder called Choreoathetoid Cerebral Palsy.   This type of brain damage is 100% preventable. All that had to be done was for the hospital to put him under the billi lights to keep his jaundice level down and monitor him. He would have been fine today had they done that. Read the whole heartbreaking story of Chace.

We were and still are devastated.   We tried to sue the doctor and the hospital for medical negligence but they lied their way out of it and unfortunately we lost. It was heartbreaking. My son deserved justice and he didn’t get it. It has been a very challenging time in our lives but we are trying to move on and do something positive.

After the trial we started remodeling Chace’s bedroom. We wanted to make it safe and more functional for him. After seeing his extremely happy reaction to his new bedroom we thought this would be amazing to do for other special needs children. We decided that we want to help as many Special needs children and their families as we can. We want to make their living arrangements a little more safe, functional and special. They deserve it!

With my design skills and Corey’s amazing carpentry skills we knew that this is something we could do together and we could do this in honor of our son Chace.